Published June 10th at 11:20am - 346 ♥ - 2 min read

Important health update

Health Eds Sport Backbone Feet Nerve Ecency

It's been awhile! I'm so happy to write a new post. The news are not good as I want but the future will be brighter and that's why I'm here.

Image made with PicProse

My backbone (spinal column)

I don't know the real medical translation but you know what I mean. My spine have a real problem and it was hard to live with. I have a "hole" and, as I write these lines, I don't know what is it! Luckily, I live in Belgium and the medical staff is surprisingly really good. My physiotherapist is awesome, my rheumatologist is brilliant, my "general doctor" is truly great.

These wonderful people work to find the best solution to heal me in the long term. It can be long and hard but it's going to be done for sustainable health (with less problems).

Here are some X-rays of my spinal column and my cervical vertebrae in profile view.

Left : My spinal column / Right : my cervical vertebrae

The Arnold's nerve

Known as the great occipital nerve (a big nerve in my neck), mine suffered an inflammation, causing "Arnold Neuralgia". Here is the list of the symptoms I have:

  • pulsing and violent pain in the base of the skull and in the head

  • frequent and violent headaches

  • pain behind and in the eyes

  • scalp high sensitivity (I can't wear headphones)

it's truly disabling for me. If it was the only problem I had, I'd have been able to deal with it, but it adds to the other worries I already have...

My flat feet

We found that many problems are also here because of... my feet! They are really flat. I don't have arch support! but really nothing. I don't share my feet photos (because I hate that) but I have a good news about that.

Now, I have orthopedic insoles and it's a game changer. I've discomfort when I wear them, but I also have MUCH less pain in my ankles, my legs, my knees and even my pelvis! It's a new way of walking for me.

Ehlers-Danlos Syndrome

There are some symptoms I cannot heal. I was born with this stupid syndrome and I'll die with. BUT, there is something I can change for a better life : Physical exercise.

I can't do gym like a crazy guy or something really hard. I can improve some parts of my body. I've got LOTS of different physical exercises to do.

So I buy some stuff like Pilates/yoga ball, fitness elastic bands, light dumbbells, ...

Some of my sports gear

I can't treat everything. I always have a few aches and pains. I'll do everything I can to avoid physical but also mental issues. I need to keep my spirits high to fight all these problems. I clearly intend to win!

Conclusion

I don't know what to do for my future. For sure, I don't want to leave HIVE but I can't promise I'll be regular with great quality all the time. I wish to comeback and made many thing for HIVE and all my projects.

My situation is hard but not impossible. I hope your situation is better and I wish you the best for your life. If you want to support me, feel free to comment and up-vote this post.

Vote for this article

50%

Comments :

hivebuzz :

Congratulations @bambukah! You have completed the following achievement on the Hive blockchain And have been rewarded with New badge(s)

You distributed more than 84000 upvotes.
Your next target is to reach 85000 upvotes.

You can view your badges on your board and compare yourself to others in the Ranking If you no longer want to receive notifications, reply to this comment with the word STOP

weone :

Thank you for the updates. Working on a solution for your EDS issue it's still being tested upon pretty experimental...

weone :

So it involves editing some gene switches and replacing them. Hopefully it cures the symptoms swiftly...

palomap3 :

It's good to hear from you again. It is true that you have a difficult situation and chronic health problems can end up doing more damage mentally than physically, so this post is very valuable. You are taking the problems one by one, you are clear about the path and you know it will take a lot of effort on your part, but you are already noticing positive changes and once the snowball starts rolling the beneficial effects will grow. Hive is here and it won't go away, take as much time as you need or use it as an exercise diary to record your progress, whatever you wish. Your projects continue to help, you already have a deep imprint here that will not fade. Take care of yourself, dear.

I have picked this post on behalf of the @OurPick project! Check out our Reading Suggestions posts!

Comment Footer.jpg Please consider voting for our Liotes HIVE Witness. Thank you!

atma.love :

i in-courage you to read this brother: https://www.vigilantfox.com/p/the-medical-miracle-they-tried-to

atma.love :

And this from @frot https://ureka.social/@frot/spectacular-results-with-dmso

pboulet :

Great to hear about you again, it has been a while indeed. Keep up the high spirit!

pousinha :

May God comfort you and help you in this path. I know what are chronic diseases (I suffer from a nasty IBS that carries many food allergies at the point I have no idea if in the future I'll be able to take a long journey flight cause the food served, bones issues, GERD and various other uncomfortably sicknesses). It's to trust God letting us to overcome one day to another. Best wishes🐣

coldbeetrootsoup :

We are here if you need us Bambukah. You also have your wonderful woman taking good care of with love and support. Never forget, that our mind is what counts the most and if you will focus and believe you can heal again, you most deffinetly will. Fight! And never give up ❤️

melinda010100 :

It's always great to hear from you! I am so glad you have a good medical team giving you some hope that your health conditions can improve. Sending hugs!

jamerussell :

@bambukah check DM, I have a couple of things for you there, and check the comments on your post here. Hope you're working up to good health quickly.

innerblocks :
***Thanks for sharing your experience with us***! TIBLogo
You have been manually curated by @thekittygirl on behalf of Inner Blocks: a community encouraging first-hand content, and each individual living their best life.
thekittygirl :
OMG, I knew about the Ehlers-Danlos Syndrome, but did not know about the other problems — your spine, Arnold's Neuralgia, and flat feet issues. Any ONE of those would be bad enough, but all of them, combined...?!?!? 😢 Please know that we think of you often in TheTerminal, and each of us often asks the others whether we've heard from you. It is always a nice surprise when you pop into chat. We miss our friend, and are so glad to hear that you are making some progress with the doctors on how to handle all the medical issues! You're in our thoughts and prayers and will be happy to see you in the server again WHEN you feel like returning! Sending thoughts, prayers, and positive energy to you! 💖
jayna :

Wishing you well on your healing journey! That really sounds like a rough road, but hopefully the exercises and therapies will give you relief and hope!

arcange :

It's great to hear from you, even if the news isn't as positive as you'd like. Hopefully your health will improve in the future.

midnightspen :

truly health does matter