Developer / Maker / blogger and more...

Date: 10/09/2022 - Upvotes : 303 - Words : 563

Why it is so hard for me at the present time ?

I had some difficult times in the last few weeks. It's not finish, but I'm better. Now is the second level to feel better. This post is made to explain my life, nothing about HIVE or computers in this post.

My medication

I have Ehlers-Danlos Syndrome, and it's difficult to live without painkillers. I have Paracetamol, Codeine, Tramadol and Morphine.

But with the current crisis, some of them are most expensive or more hard to find. My decision is clear: I need to reduce them. It's very hard, but it's my only choice at this time to continue everything I do.

I try to do more exercises every day and many of them are from my physiotherapist. Even if it is sometimes heavy, I stay in warm clothes to improve blood flow. I try to be as careful as possible with my movements to avoid joint dislocation, ...

I also have orthotic devices, splints (or braces, don't know the translation), compression clothes. They help me to live better without medicine.

All of the above made my spirits low but I do the best to get better and I don't give up!

Strong man by Elias from Pixabay

I'm European

As you know, Europe is in crisis time: drop of the €uro value, Ukrainian war, inflation, some shitty politics (Bonjour la France) and many more. But the greatest one is the Energy. In Belgium, we start to see rise of prices of electricity & gas. According to estimates, the price rise will be x4 for electricity and x6 for gas this winter.

I've made some house improvements to avoid moisture / humidity and cold air, but it's not enough. We still have to heat up the house.

I'm not the only one and I send many love for all Europeans who are going to throught the crisis. May the Force be with you!


As you know, I'm live in Belgium since 2 years now. And I don't have a job. With my syndrome, it would be hard. But that means I don't have payroll. Of course I have some cryptocurrencies and that's what keeps me going !

I made another choice: I follow paid training courses. The first one is Dutch (Goededag!). This is very important to get access to another paid training courses or jobs in Belgium.

It takes time, but after, I could take a part-time job that fits with my syndrome.


I'll try to write some posts about my tips and tricks to save money or live better with my syndrome. If you want, I can try to write in NL too.

It's a difficult moment to go through; but the Life will be better after that. I don't lose hope about future, and I'll be back better than ever after that !!!

If you have any question, don't forget you can ask them in comment section. You can add a comment too if you have some advices for me. If you want to support me and my HIVE projects, you can upvote and share this post. You can also follow me on Twitter.

I wish you the best. Have a nice day!

Photo credit : Elias de Pixabay

Tags : health crisis finance energy life tribes archon thoughtfuldailypost love alive

Vote for this article


Comments :

fulltimegeek :

I have Ehlers-Danlos Syndrome

Is that something The Universal Antidote can solve?

vlemon :

Stay strong mon ami!

Tu vas y arriver!

idksamad78699 :

Hey, Hope you're having a Good day!

All of the above made my spirits low but I do the best to get better and I don't give up

Keep the Spirit High and Giving up ain't an Option... I see you're Strong Soul and throughout This crisis it's Really Getting Hard for many even though being a student I can tell how tough it is but with syndrome....I just want to send some Good wishes and more prayers for you!

It would be So nice of you if you write those tips of saving and living better with syndrome. It will definitely help or motivate many souls on hive.

I wish you a wonderful day ahead and have a nice weekend or new week ahead.


pizzabot :

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wesphilbin :


You already know how I feel; dealing with Multiple Sclerosis, I am sensitive to your situation. No... not the same, but you know what I mean. For those who might not know:

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. Aug 25, 2022


I can't say thank you enough! For all you do... whether for the blockchain or just your cool and awesome personality. As I always say... focus on you first. We all know you're dealing with so many different things. Just know you are being thought of, by many, and I hope you are able to get all the things accomplished that you want,,,


@tipu curate !LUV

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flaxz.alive :

Sorry about what you are going through man, and I hope you can figure it out over the winter, and also that your training gives results as your medication is dropping, take care and stay !ALIVE

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hislab :

In life there is always a down time. Nothing goes on interesting and good at all times. Most time tough time are there to make us stronger and wiser in our deeds.

I have learnt in your story

papilloncharity :

I admire the way that you are dealing with your situation and never giving up is the right way to go. Glad that you are fighting for a better future and all our wishes for you to go from strength to strength. You are in our prayers Florent.


kaazoom :

It's not easy living with a chronic health problem, particularly when you can't work and the price of everything is rising. Stay strong.

aljif7 :

Courage my friend! It’s a difficult time, but we become creative to go ahead and save in the needs to get another. One day at a time! Hopefully my upvote helps and also reblogged your post.

queenstarr :

I am so sorry to read the difficulty you're experiencing at this. You're such a kind hearted person, I pray the good Lord heals you and causes surplus provision. You're a valuable person on Hive and lovely seeing how strong you're coping through all this. Cheers Braveheart⭐️❤️

kerrislravenhill :

I hope you find the effective supportive therapies you need until someone finds the cure to this genetic disorder. 💓